HB 1116, 2015 (New Section - as Truly Agreed)
9.151. May seventh of every year shall be designated
as "ROHHAD Awareness Day" in Missouri. Rapid-onset obesity with
hypothalamic dysfunction, hypoventilation and autonomic dysregulation
(ROHHAD) presenting in childhood is a rare syndrome characterized
by rapid-onset obesity in the first ten years of life, impairment
of the autonomic nervous system, and later onset of reduced lung
function. The cause of ROHHAD is unknown and currently there
is no cure. Early diagnosis and proper management may help to
avoid catastrophic consequences.
It is recommended to the people of the state that this day be appropriately observed by participating in awareness and educational activities on the symptoms and impact of ROHHAD and to support programs which advance treatment, assist in the discovery of a cure, enhance the quality of life of children with ROHHAD, and ease the financial burden of families of children suffering from ROHHAD.