Truly Agreed, 2015


View proposed language

HB 1116, 2015    (New Section - as Truly Agreed)    

9.151. May seventh of every year shall be designated as "ROHHAD Awareness Day" in Missouri. Rapid-onset obesity with hypothalamic dysfunction, hypoventilation and autonomic dysregulation (ROHHAD) presenting in childhood is a rare syndrome characterized by rapid-onset obesity in the first ten years of life, impairment of the autonomic nervous system, and later onset of reduced lung function. The cause of ROHHAD is unknown and currently there is no cure. Early diagnosis and proper management may help to avoid catastrophic consequences.
It is recommended to the people of the state that this day be appropriately observed by participating in awareness and educational activities on the symptoms and impact of ROHHAD and to support programs which advance treatment, assist in the discovery of a cure, enhance the quality of life of children with ROHHAD, and ease the financial burden of families of children suffering from ROHHAD.



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